3/5/13
...
Things are really bad. I currently feel like there is an oil drill poking into the back of my head, but that is the least of it. My Doctor and I decided to take me off one of my antidepressant/sleep medications to see if that helped my energy levels and creativity level, and I went through three days of hell when I was off it. So much anxiety I was like a frightened child waking from a nightmare all sweaty in a dark room. Only thing was the nightmare lasted all day, and the fright didn't relieve for a second.
I broke down Friday night and Ron almost took me to the hospital because I wasn't acting like myself, and well there is more but we won't get into that here.
Saturday I had to go with Ron to teach a class as we couldn't get out of it, so I was there nervous the whole time in a church group (oh do I hate any talk of saviors in times like these), and it took all day, and I couldn't curse (I realized I curse a lot), and they got Subway for lunch so I had nothing to eat but a mucky sticky gluten-free meal bar, and they had no soda. When you are in the pit-- I mean the real pit, none of this "oh life is hard right now, but I know will get better" bullshit, but the real "my whole life has been so hard and I really don't know how much more I can take, like I may give up any day now" kind of pit, well that's when those little things like Subway matter.
Oh and by the way my anxiety is so bad I have to work to breathe. I mean I'm breathing, staying alive breathing that is, but I can go an hour or so between a deep breath that fills my lungs to that satisfied level we take so for granted until it takes an hour to have one. I move and struggle like a sanded fish, wiggle, lift my neck high, put my arms over my head. And still nothing. And it's the fifth day of that. It plagues my sleep and waking moments equally. And so that's it too.
Sunday we had a date. I didn't know if I could do it that morning. But somehow I pulled it together band-aids and all and we went to lunch. I ordered grilled chicken breast because you know, being gluten-free is shitty at restaurants and I felt like I was eating human flesh, but kept eating it because my annoying Kaiser doctor told me I need to eat chicken every day for protein. I looked at Ronald. I got sad. I looked to the side at nothing. I got sad. And then we walked in a store, and then we went home.
Yesterday I had therapy and Ronald came with me as he is working very little this week to help me get back on track as I have gotten back on the medication we had stopped. But it takes time for that to get back into my system. So I go to Ron's work to fill my meds (yes, my ziploc freezer bags of pill bottles have to be kept at Ron's work so I don't take them all in one sitting). And I hide in there and fill them up, 3 pill holders over twenty pills per day, so that's a lot of pill-holder-filling and it takes a lot of time and a lot of memory to know what to put where. Then we got mexican food and I talked to Ronald about how I wish I could be in therapy for ten days or so just to work it out because two one hour sessions per week just isn't cutting it, and he understood, and then I went to sleep. Still not able to breathe normally.
Today I wake to cramps and all that nonsense that comes with being a woman. I get bad cramps, like roll around in the bed in agony kind even with hand-fulls of ibuprofen, and heat pressed against my stomach. So usually I lay down when it's bad and the pain comes in contractions so I can fall asleep out of exhaustion from the ache, but then with the not breathing right thing I couldn't. So I laid there, staring at Ronald working next to me on his laptop. And I thought, wow, this (we) could have come to so much. But instead this wonder of a person next to me is nursing me and trying to convince me not to kill myself. And that made me really sad. I mean, it's really horrible. I mean, really unfair too.
And you can't rely on anyone, ought to just do it yourself. And I can barely shower due to the pain in my arms. They want me to dye my hair, buy new clothes (which I have no money for), why would I do any of that when I hate myself, and feel like the end is near? I mean really near. I mean imminent.
But then I keep going, like the girl who cried wolf. But one day it won't be feathery and light and fixable, and on that day no one will be here to check on me, and that is what fucking terrifies me because the real me doesn't want to disappear. So maybe I should dye my hair, and get a new outfit. And pull my hair back in a bow and put that pink lipstick mask of smile on, and blink those eyes, and and talk those words you know are safe and comforting to everyone. Like a little celluloid covered boxed up doll.
3/1/13
some good
Things are rough, but there is always some good muddled in each day.
Circket and I sitting next to each other.
Isabelle and Cricket being buddies at bedtime.
Amelia and Cricket waiting patiently for a treat.
Isabelle begging for a treat with her crazy face!
Gloomy little flower.
Going to the market for fruits and veggies (yum!).
New votive holders for the house.
Weekly flower arranging.
---
Another good is the amazing weather we are having. Seriously it is so perfect out! Bright and cloudless, upper 60s low 70s. The trees and flowers are bustling open, and new types of fresh-cut flowers are showing up at the market. The hills around us are bright green, and soon the whole neighborhood is going to be bursting at the seams with greenery and all the colors of the earth.
xx, C
it can always get worse
I have known for a long time that things can get worse. As my life is continuing to deteriorate. Knowing that doesn't really soften the blow for me or relieve the disappointment I feel although I wish it did.
I'm twenty-nine years old and can barely walk a flight of stairs. If I complete a single errand and then lay around the rest of the day I consider that a success as I have no energy or physical strength.
It is my first night without one of my sleeping pills. My doctor and I think it is making me sedated during the day, so I am going off it. Of course I can't sleep tonight, even though I am on Vicodin. Oh, and the Vicodin isn't relieving my pain at all.
I am taking Vicodin because I pulled a ligament in my shoulder carrying in some groceries (fibromyalgia makes me more prone to injuries like that), so I am in even more pain than normal. Like excruciating pain. And I just have to deal with it.
Pain is so depressing. It's awful when I can't brush my teeth at night because my hands go numb and ache so bad due to carpel tunnel (which I am wearing braces for with little relief). It really sucks when I can hardly walk around during the day because my feet hurt so bad due to plantar fasciitis and I have to spend hundreds of dollars on shoes to help my feet heal when we don't have the money.
And then I go see my doctor to talk about the pain and she tells me she is prescribing me pain meds but doesn't agree with giving them to me. Even though I am in horrible pain. Even though the ones she has prescribed are not working.
It sucks when I have two pairs of jeans to wear each day that are falling apart. I have two bras and the underwire has fallen out of one of them. I have eight shirts that are seriously all the same but in different colors, they are also losing their shape. When I have poor body image it's awful to not have clothes that help me feel even a smidge ok with myself.
Our dishwasher only washes the bottom rack so we have to do dishes by hand and it has caused my back to ache for two months (now Ronald who is busy enough already will have to wash the dishes). Oh, and we can't afford to fix the dishwasher. And tomorrow I have to get an x-ray to make sure my back is alright.
Our house hasn't been swept or vacuumed in over a month and we have three dogs that shed everywhere. I can't dust, I can't fold the laundry or lift a heavy load into the wash machine. I can hardly feed our dogs breakfast. I can't cook but maybe once a week if I'm lucky. I can't clean our bathroom (it has been maybe eight months since the shower has been cleaned), I can't bathe our dogs who haven't had baths in two months. I want to redecorate some things but I can't even lift my arms to take a picture off the wall. I can hardly light a candle at night. Or stand up from a seated position.
I have terrible blisters on my heels from wearing cheap shoes so I have to wear boots or flip flops until they heel because they hurt so bad. And I don't have any flip flops.
Ronald is so busy with work and school we have very little time together. And when we do we are both so tired from the day we don't really have much energy to connect. My lack of energy keeps me from doing much (not that we have time anyway) other than going on a lunch date together on the rare occasion. Plus, I am gluten-free and oh my lord food is so boring, and anytime I go out to eat I have to be so careful. I eat the same things every day because I don't have the energy to make anything else. I hate food.
Plus I'm depressed, like for real. Plus all my creativity has died. Plus I can't sleep tonight. I know things can still get worse. But right now life just sucks.
Sorry to be such a downer, but I just need to vent.
Here's hoping tomorrow will be a little brighter,
C
Labels:
bad days,
depression,
fatigue,
feelings,
fibromyalgia,
gluten-free,
health,
pain
2/26/13
leading me now
It's been a while. I have been so tired and in pain that I haven't been doing much of anything. Since last night my left arm has been so sore that I can't lift it properly. It's basically useless and I can't do any chores or even shower . This morning I went out to run an errand but once I got to the parking lot and had to face being in public, I started crying and decided to just head home. It was a bad day. I cried most of the way home...
When I got out of my car in our driveway I saw a huge bird sitting on the telephone wire just staring at me. I tried to stay still and just looked at it. We looked at each other for a while. Then I grabbed my phone and took some photos. The bird just stayed there! I ran in the house and got my real camera and took the photos above.
I think it is a hawk. It let me get so close, chirped at me once, and even let me walk under it! It was a cool experience. I went inside and peaked out my window to see if it was there a few times. It stayed for a while longer, then I looked and it was gone.
I'm taking it as a sign that I need to be strong and courageous. And that maybe one day things will get better.
Once I feel a bit better. I will announce some exciting ideas I have for my creative/blog life. :)
xx, C
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